About Motor Neurone Disease (MND) – Key Facts
- MND is a fatal, rapidly progressing disease that affects the brain and spinal cord
- It attacks the nerves that control movement so muscles no longer work. MND does not usually
affect the senses such as sight, sound, feeling etc.
- It can leave people locked in a failing body, unable to move, talk and eventually breathe.
- Over 80% of people with MND will have communication difficulties, including for some, a complete
loss of voice.
- It affects people from all communities.
- Around 35% of people with MND experience mild cognitive change, in other words, changes in
thinking and behavior.
- A further 15% of people show signs of frontotemporal dementia which
results in more pronounced behavioural change.
- It kills a third of people within a year and more than half within two years of diagnosis.
- A person’s lifetime risk of developing MND is around 1 in 300.
- Six people per day are diagnosed with MND in the UK.
- It affects up to 5,000 adults in the UK at any one time.
- It kills six people per day in the UK, this is just under 2,200 per year
- It has no cure.
For more information on life with MND, please click on the link and watch the short film “Motor Neurone Disease in 60 Seconds” made by Bernard Bushnell featuring Steve Evans and his family. Steve has since passed away but the fight goes on.
Also, please make the time to watch Bernard Bushnell’s second film – Enduring Motor Neurone Disease – giving an insight into the daily struggles of living with this horrific disease. It clearly illustrates why we need to raise funds to help people suffering with the disease and their families and also to fund research to eradicate it.
Your donations can help MND sufferers obtain access to the latest technology, including voice banking:
What is voice banking?
Voice banking is a process that allows a person to record a set list of phrases with their own voice, while they still have the ability to do so. This recording is then converted to create a personal synthetic voice.
When the person is no longer able to use their own voice, they can use the synthetic voice in speech-generating communication devices to generate an infinite number of words and sentences. The voice created will be synthetic and not be a perfect replica of the person’s natural speech, but it will bear some resemblance.
Voice Banking in Dorset —-a joint project between Dorset Health Care NHS Foundation Trust & The East Dorset & New Forest Branch of the MND Association
Thanks to a generous grant from the local ED&NF Branch, from 1st November 2017 anyone in Dorset who has been diagnosed with MND should have prompt access to their local Speech & Language Therapy Team who will be able to support them to bank their own voices should they wish to do this. Dozens of information leaflets & referral forms are out with local NHS staff and the Neurologists are primed to let people know about the project. They have 9 therapists & assistants fully trained to help, plus 4 laptops & 12 headsets to loan out. A ‘ How To Do It’ Guidebook has been written to take people through the planning & the process should they wish to Go Solo. All the therapists & assistants banked their own voices (for donation)